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Caregiver Journey
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Caregiver Journey
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    • Becoming Aware & Adjusting
    • Shifting Priorities & Seeking Help
    • Finding a Rhythm
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Becoming Aware & Adjusting

During this phase, the caregiver notices changes in the veteran service member’s behavior. These changes may affect the dynamic of their relationship.

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Shifting Priorities & Seeking Help

The caregiver accepts an increased level of responsibility for their loved one’s care, and reaches out for external assistance.

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Finding A Rhythm

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BECOMING AWARE & ADJUSTING

Finding a Rhythm

Key Caregiver Experiences

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Continuing to feel uncertain about the future

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Witnessing permanent changes in their life brought on by the requirements of their loved one’s care plan

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Developing new skills to face new challenges

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Benefitting from the support of a reliable network

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Returning to self-care and personal hobbies

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Feeling greater confidence in their advocacy & outreach efforts

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Experiencing hope for their future, even if it turns out differently than expected

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About This Stage

 

During this phase, caregivers start to establish a new rhythm for their day-to-day lives. The increased sense of stability and predictability helps caregivers and veterans/service members leave “survival mode” for a more sustainable mode of living.

In this stage, caregivers start establish a more permanent routine and develop their own support system. Although they will undoubtedly encounter new challenges and setbacks, they will be better equipped to respond or adapt to those moments.

becoming aware & adjusting

Key Caregiver Needs

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Opportunities for self-care and respite from caregiving responsibilities

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Increased access to necessary services

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Time to spend with family and children without the stresses of caregiving

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Support in recognition of the caregiver’s integral role on the care team

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Support in the event that the veteran/service member’s diagnosis or care plan changes

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Access to a peer support group

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Assistance for reentering the workforce

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Understanding and flexibility at work to accommodate the responsibilities of caregiving

Need more support? Visit our Caregiver Resource Directory.

Learn more about the Caregiver Journey Map

ABOUT THE MAP
  • Landmark

    Builds Network

    Caregiver begins to establish personal support system

    Caregiver begins to establish personal support system

    Caregiver peer support can provide a network of people who know and understand the caregiving journey who can listen, encourage and guide caregivers so they don’t feel alone.

    Structured caregiver peer support may provide:

    • Connection – An opportunity to connect about a shared lived experience
    • Engagement – Offers the opportunity to give and receive support
    • Knowledge – Increase your knowledge about caregiving resources and events
    • Skills – Build skills to improve your caregiving as well as your self care
    • Hope – to decrease isolation and promote wellbeing
    Information contributed by:

    American Red Cross Military and Veteran Caregiver Network (MVCN). The MVCN provides caregivers of all eras with peer based support and services.

  • Landmark

    Finds Rhythm

    Each day is a cycle of understanding and problem solving

    Each day is a cycle of understanding and problem solving

    RESOURCE

    As caregivers continue to gather tools to help them navigate the caregiving journey, they will start to make adjustments to their lives that help them find their rhythm. Caregivers will often experience setbacks and encounter challenges on a day to day basis, but when they receive the right support and training, they will eventually be able to manage these challenges more effectively.

  • Journey Step

    Re-Balance

    Looks for time, support, and resources - establishes new family roles and routines - sets up personal support network

    Looks for time, support, and resources – establishes new family roles and routines – sets up personal support network

    Video

    Faun is a caregiver to her husband, Danny. Danny, a wounded combat veteran, provides care and support to other veterans. Faun discusses how their family has adjusted to the Caregiver Journey.

  • Journey Step

    Thrive

    New capabilities allow caregiver to re-balance

    New capabilities allow caregiver to re-balance

    Video

    Meg Kabat, National Director of the VA Caregiver Support Program, discusses what it means to thrive as a military or veteran caregiver.

  • Landmark

    Shares Experience

    Connects with fellow caregivers for strength and support

    Connects with fellow caregivers for strength and support

    Video

    Betsy Eves is a caregiver to her husband. Watch this video to learn what has helped her the most in her caregiver journey.

     

  • Transition Point

    New Challenges

    “Everyday is a work in progress” - The journey continues to evolve - family faces new challenges

    “Everyday is a work in progress” – The journey continues to evolve – family faces new challenges

    Video

    Betsy Eves is a caregiver to her husband. Learn about what it was like for her to experience new challenges along her caregiver journey.

Moving to the Next Stage

The Finding a Rhythm stage does not represent the “end of the journey,” but rather an ongoing process to adapt and adjust to a new way of life. Caregivers and their families may still experience new challenges that set them back, or force them to adjust, but as the caregiver continues along their journey, they will build the tools they need to respond more effectively to these new challenges.

Becoming Aware & Adjusting
shifting priorities & seeking help
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Shifting Priorities & Seeking Help

The caregiver accepts an increased level of responsibility for their loved one’s care, and reaches out for external assistance.

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Becoming Aware & Adjusting

During this phase, the caregiver notices changes in the veteran service member’s behavior. These changes may affect the dynamic of their relationship.

Provide Feedback on The Caregiver Journey

The Caregiver Journey Map is an ongoing work in progress, built by the experiences of Caregivers.

Provide Feedback
Elizabeth Dole Foundation logo Philips logo Wounded Warrior Project logo

The Caregiver Experience Map is a collaboration of the Elizabeth Dole Foundation, the Department of Veterans Affairs, and Philips, with support from our partner organizations and caregivers themselves. Special thanks to Wounded Warrior Project for their ongoing support for the creation and digitization of the Map.

Finding support can be difficult, especially when your time is limited. Browse our vetted directory of valuable resources to find organizations that help military caregivers and their families.

Explore Resources

Interested in learning more about or contributing to the Military and Veteran Caregiver Experience Map project?

Contact Us

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